FLORIDA — Florida Attorney General James Uthmeier has issued a consumer alert following 23andMe’s bankruptcy filing, warning Floridians to take action to protect their genetic data.
While exact numbers are unknown, thousands of Florida residents are believed to have used 23andMe or similar services in recent years.
In Okaloosa and Walton counties alone—home to more than 300,000 people—it is estimated that between 15,000 and 30,000 residents may have submitted DNA samples to consumer genetic companies. A significant number of those individuals are believed to be 23andMe users.
23andMe, a direct-to-consumer genetic testing company, filed for bankruptcy on March 23. The company collects and analyzes DNA data, including highly personal information tied to a person’s health, ancestry, and identity.
“Consumer privacy is paramount, especially when it concerns an individual’s DNA,” said Attorney General Uthmeier.
“Floridians are right to be concerned about where their information is held. We are offering tips to Floridians who wish to proactively protect their data by requesting the destruction of their test sample and deleting their accounts amid 23andMe’s bankruptcy.”
According to a statement from 23andMe, the company plans to continue operating normally throughout the bankruptcy sale process, including maintaining current data storage and privacy practices. However, the Attorney General’s Office recommends consumers take steps to limit their exposure and control their personal information.
How to delete your 23andMe genetic data:
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Log into your 23andMe account at 23andme.com
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Go to the “Settings” section
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Scroll to “23andMe Data” and click “View”
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Download your data if desired, then scroll to “Delete Data”
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Click “Permanently Delete Data” and confirm via the email sent to you
To destroy your 23andMe test sample:
Update your preferences in the account settings under “Preferences.”
To revoke research permission:
Withdraw consent from the “Research and Product Consents” section in your settings.
Mr Uthmeier also reminded consumers of their rights under Florida’s Digital Bill of Rights, including the right to request data deletion, revoke consent, and prevent personal data from being sold or used without permission.
Consumers with questions or concerns can visit MyFloridaLegal.com to learn more about their rights and the available steps to protect their information.
